MDS Alliance
Helping to better serve the MDS patient and caregiver community globally through optimal care for all MDS patients worldwide
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EMA - Search for Clinical Trials

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28 February is Rare Disease Day

28 February 2025

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The global MDS survey closed

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MDS World Awareness Day 2024

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Blood Cancer Awareness Month 2024

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MDSA at EHA 2024

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Advancements in Myelodysplastic Syndromes Classification: A Comparative Analysis of ICC and WHO-2022 Systems

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29 February is Rare Disease Day

29 February 2024

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Experiences and Support Needs of Caregivers of Patients with Higher-Risk Myelodysplastic Syndrome

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MDS World Awareness Day

25.10.2023

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MDS Global Patient Survey 2022: We are pleased to share the report of 2022 Global Survey, based on responses from nearly 700 MDS patients representing 32 countries.

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Clip MDS Animation
MDS New Understanding, New Possibilities: Watch an illuminating video by world-renowned artist Noma Bar that sheds light on this new scientific development.

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Webinar invitation

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Rare Disease Day

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IPSS-M Risk Calculator for MDS

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Rethinking blood use in Europe to improve patient outcomes

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Emergency Health Information Card

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MDS World Awareness Day

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Bone Marrow Failure and the Coronavirus (COVID-19): Multilingual Resources & Frequently Asked Questions

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The MDS Global Survey is now closed

15 November 2021

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Want to learn about novel approaches in MDS?

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The latest on MDS, its prognosis and its treatment

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62nd ASH Annual Meeting and Exposition

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MDS World Awareness Day 2020: Faces of MDS – Watch the Video

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Get a copy of “Out of Shape” by Bergit Kuhle: an autobiography of life after an MDS diagnosis

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HARMONY: a €40 million PROJECT FOR BETTER CARE OF PATIENTS WITH HEMATOLOGIC MALIGNANCIES

Brussels/Salamanca – January 9, 2017

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Urgent appeal to healthy people: Please give blood now!

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Coronavirus (COVID-19) Guidance for Patients and Caregivers

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MDS World Awareness Day 2019: MDS Poetry

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Precision medicine to treat MDS in Denmark: good news for patients worldwide

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Niels Jansen
Much new knowledge but no new drugs

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The Canyon between Diagnosis and Therapy in MDS

12 June 2019

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Guiding Principles on Reasonable Agreements between Patient Advocates and Pharmaceutical Companies
Has your Patient Group set up a reasonable legal agreement with a Pharmaceutical Company?

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Online Survey, illustration
Global Quality of Life Survey for Patients with Acute Leukemia

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Focus on Croatia: MDS Alliance Members’ News

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Focus on Kosovo: MDS Alliance Members’ News

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Focus on Finland: MDS Alliance Members' News

13 June 2018

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EuroBloodNet seeks better care for patients with rare blood disorders

01 June 2018

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Latest News from Our Members

07/12/2017

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MDS-Awareness-Day
MDS Awareness Day 2017: How we bombarded the Twitter world with MDS facts

26/10/2017

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Can MDS experts review (and help) more patients please? A one-off specialist consultation should be offered to all newly diagnosed patients

19th April 2017

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Self reported fatigue provides prognostic information and should be included in routine diagnostics and controlled trials

12 April 2017

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Update on the work around the ERN European Reference Networks.

Thursday, July 28, 2016

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POST ASH 2016 Report

Catch-up Online

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